In honor of TELL A STORY DAY, I’ve collected some stories that I think need to be told.  We have what many refer to as an “invisible disease”.  Diabetes is not something that is typically visible, rather a very personal battle that happens behind closed doors.  To look at a person you cannot tell they are diabetic.  Just because it seems like a person is coping well with their disease is not a reason to assume that everything is just fine and dandy.  It is not.  We need a cure.  Soon.

What is diabetes?

Diabetes is the name given to disorders in which the body has trouble regulating its blood glucose, or blood sugar, levels. There are two major types of diabetes: type 1 and type 2. Type 1 Diabetes is an autoimmune disease in which a person’s pancreas stops producing insulin, a hormone that enables people to get energy from food. Type 2 Diabetes is a metabolic disorder in which a person’s body still produces insulin but is unable to use it effectively.

Max Sonnenschein writes:

Once Upon a Time my kid ate anything he wanted. Those were the days my friend. Oh how I miss the drive through windows and the pizza delivery boy. All that came to a screeching halt when a bomb name Type 1 dropped in our world so we had to give up all drinks w/ sugar and learn a carb to unit ratio that started to rule our meals. Oh yeah, bomb 2 blew up next. This time it was called Celiacs and something called gluten had to go. Well, can I tell you it’s in everything including pretzels. Just recently we discovered Glutino chocolate covered pretzels, gluten-free of course. Jake loves them. Did I mention that for a small bag they cost nearly $7! So pretzels are back on the island and life goes on. But we still have to count the carbs and inject insulin so even our gluten-free $7 pretzels have a larger price.


LaTisha Conners writes:

Once Upon a Time we were a “normal” American family.  We functioned pretty much like other families.  We all did our daily activities and when the day was over, we slept.  Then my daughter began wetting the bed.  Not just once in a while, but quite often.  It was not just once during the night.  When we went in to see the doctor, we heard a diagnosis that changed our family life forever.  Type 1 Diabetes!  Our world has not been the same and we don’t sleep much at night anymore.  My daughter has had to learn to give herself insulin shots, using an orange and syringe filled with saline solution.  No, the disease does not cause any outward “signs”, but every activity of every day revolves around it. 


Michelle Wheeler writes:

Once Upon a Time we did not have to think about what we fed our child.  But when my baby started vomiting uncontrollably, I had to get him to a doctor immediately!  The doctor said it was more than likely a virus that was going around and told me to keep her hydrated with juice and pedialite.  Just two days later, she was listless and nearly lifeless!  We took him to the emergency room and he was so dehydrated they could not even start an IV.  They stuck a feeding tube down his throat and did the standard blood tests.  That’s when we got the devastating news that our child was a Type 1 Diabetic.  Our small son has a disease?  It took a while for this to sink in, but we gathered our strength and began the fight.  That night at the emergency room his blood glucose was close to 1000!  He went to intensive care for the night, then was transferred to a room.  We learned all about our son’s horrible disease – how to give him shots and what we need to feed him.  I don’t think people understand how life-threatening this disease is.  Maybe people understand but just don’t know what they’re supposed to do with that information.  I think we all feel a bit helpless about the disease.


Here is the story I wish – I wish – I wish I could tell, and hope to tell one day soon:

Once Upon a Time a lot of my friends and I had Diabetes.  Now, we do NOT!!! 😀