NATIONAL FIBROMYALGIA AWARENESS DAY

TL 5-12 NATIONAL FIBROMYALGIA AWARENESS DAY

GOD LOVES ME WHEN I HURT

The theme for 2015 is YOUR VOICE MATTERS.  MAKE FIBROMYALGIA VISIBLE.

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If only hugs didn’t hurt

The National Fibromyalgia & Chronic Pain Association sponsors activities and increase opportunities to take part.  Events extend throughout the world and through the month of May.

When people say, “But you look so good”, how do you reply?  Although comments like these are meant to be complimentary, they underscore the importance of speaking up about chronic pain illnesses.

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Feeling as fragile as the wings of a butterfly

 

Today, celebrate the victories and simple successes.  What have you overcome?  Do all you can to stay optimistic and positive as you deal with fibromyalgia and chronic pain.

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Remember 

 

Today, remember those lost to the disease and honor people who have fought or are fighting fibromyalgia and chronic pain.  Let a friend know that you care by making a phone call or sending a card.  It means so much to someone facing this daily challenge.

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Unlock as many doors as you possibly can

 

Today, unlock as many doors as you possibly can.  Have you found anything that brings relief?  Share your tips with others who are suffering, that they might try the same thing.  As we find answers along the way, we can also show support for others.

The best secret weapon I’ve found is Organo Gold Gourmet Black Coffee.  This wonderful instant coffee has eased my fibromyalgia symptoms significantly.

http://www.amazon.com/Organo-Gold-Gourmet-Black-Coffee/dp/B003CGJAIM 

Why drink Organo Gold Coffee?  Organo Gold 100% Certified Organic Ganoderma Lucidum provides the following benefits:

  • Increased energy and stamina.
  • Increases brain power.
  • rejuvenates and makes you feel young and alert.
  • Strengthens the organs for elimination of toxins.
  • Uncovers arteries.
  • Fights atherosclerosis and obesity.
  • Improves sexual performance.
  • Helps to treat anxiety and high blood pressure.
  • Helps with hepatitis bronchitis, flu, insomnia, asthma
  • Serves as an anti-inflammatory and anti-bacterial because it increases the activity o the immune system.
  • Strengthens the bones.
  • Destroys cancer cells.
  • Optimizes the use of oxygen in the body and improves sinusitis.
  • Cleanses the kidneys and liver.
  • Overall improvement of health and quality of life.

Organic Ganoderma contains vitamins, minerals, 150 antioxidants and 200 active elements.  No other herbal product comes close to these amounts!  For instance, green tea only has 11, and the best antioxidant food supplement on the market has only 30.

The days of suffering in silence are over.  It’s time to fight back and take action against a disease that has taken too much.  🙂

 

 

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THANKS LIVING DAY 11

TL THANKSGIVING

PRAYER OF THANKS FOR GUIDANCE
Today the skies are clear and blue. My life is going very smoothly now, but there are some gray skies once in a while. I am a chronic pain sufferer. I hurt every day, but the pain level varies from day-to-day. Chronic pain is not just pain that is sometimes there, then leaves, then comes back again.  Chronic pain is the first thing you feel when you wake up in the morning and the last thing you feel when you close your eyes and blissfully fall asleep (if you are fortunate enough to be able to sleep).

I am so grateful for the good days! To be able to travel and walk around the Longaberger Homestead was a real blessing to me! It was a dream to see the Homestead in the fall, and I got to do that! It was absolutely breathtaking!

What mask(s) do you wear?

Today is HALLOWEEN of course! Some days when my pain levels are especially high, I need to wear a mask and act like everything is just fine. Fortunately, today is not one of those days – and I am so glad! Thank You, Lord! ❤

WORLD ART DAY

TL 8-9 WORLD ART DAY

https://youtu.be/oRKs5_Jigls
Today is WORLD ART DAY!!! I’m sure the intent is for us to celebrate the works of man, but in my opinion they pale when compared to God’s creation. All art created by man comes from work already done by God. Think about it.

My favorite artist was Thomas Kinkade. I like that he gave glory back to God not only for his talent but for the subjects he chose to capture on canvas. I especially like the bridges for some reason. While I realize that bridges per se are made by man, the beauty that surrounds them are definitely the awesome creation of God.  I wish I could share some of his art here, but I’d be violating copyright laws if I posted them here.  😦  There are TONS of slide shows on You Tube.  Please check them out.

On this special day I want to urge you to see the beauty around you. This may be difficult if you are in chronic pain or grieving today, but it sometimes helps if we can stop to look at nature and enjoy our surroundings. It has a way of rearranging our priorities and getting our minds refocused. It makes our problems seem smaller in the grand scheme of things. Looking at God’s creation has a way of calming my spirit and once again I can say with confidence, “God is in control and everything will be alright.”

It’s a daily struggle to keep a positive attitude in the midst of grief and pain. There is not a time limit on grief even though most people would like to impose a time limit on it. People are uncomfortable talking about those who have died. I find it comforting to talk about my family because it brings such happy memories to mind. I could talk about them for hours but most people do not want to hear about them. It makes them uneasy and they tend to want to change the subject. I’m viewed as a “downer” when I talk of those who are no longer here.

There are days when all I can think about is the pain of neuropathy. When chronic pain is with you every day it is not easy to see anything good in the world. I was talking with a friend on facebook yesterday and mentioned that the only time I don’t feel pain is when I am sleeping.

I made an effort to find beauty in God’s creation today. I was walking out of a restaurant and spotted a single yellow daffodil in the landscaping just outside the building. Yellow is my favorite color, but it is even more captivating when it is against the beauty of a dark blue sky. It was as if God pointed it out to me on purpose. It’s like He knew I needed to see it and I’m so thankful that He showed it to me.

Then sings my soul, my Savior God to Thee, How Great Thou Art. How GREAT THOU ART! ❤

NEIGHBOR DAY

TL 5-19 NEIGHBOR DAY

https://youtu.be/IwrkRgZmTqw
How important is support in the fight against diabetes? It’s pretty crucial to be sure. I’m one of the lucky ones (lucky – did I just say that?) – my husband and I are both Type 2 Diabetics and at least as far as meal planning goes, we are on the same page and support each other.

There’s something about knowing you are not alone and don’t have to be a lone ranger with diabetes. It’s that way with other things too. I’m part of a great chronic pain support group. There are others who can totally relate to what I’m feeling. It makes me feel less crazy inside! I’m also in a terrific grief support group. Again, I’m not alone in my struggle there. It’s good to reach out to others because there really is strength and courage to be found in support groups!

Facebook is such a great place to find support for whatever you struggle with in life. I lost most of my family in death and have very few friends due to limited mobility, but through facebook I’ve connected with hundreds of others who walk a similar path. My husband is my co-star, but through various groups, I have a great supporting cast for the movie of my life!

If you feel alone in any struggle you face, you don’t have to walk the path by yourself. There are groups – and some are closed, so no one will see anything you post except the people in the group. This blog also has a group to offer a little more support for you. You are welcome to come over and join us. We usually have some great posts there every day.

How about a Good Neighbor Day parade???  I think that would be an excellent idea!!!

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So, let’s make the most of this beautiful day.
Since we’re together we might as well say:

Would you be mine?
Could you be mine?
Won’t you be my neighbor?
Won’t you please,
Won’t you please?
Please won’t you be my neighbor?
– Mr. Rogers

Today is NEIGHBOR DAY!!!  Are you diabetic? In chronic pain? Grieving? Well, welcome to the neighborhood. You are not alone!

WEAR PURPLE FOR PEACE DAY

TL 5-16 WEAR PURPLE FOR PEACE DAY

Wear purple for world peace. This is WEAR PURPLE FOR PEACE DAY!!! Inner Peace brings with it the thought of relaxation. Here are some effective relaxation therapies:

BREATHING.  Well, that is certainly helpful, isn’t it?  Breathing exercises have taught me how to breathe correctly to relieve my stress.  The technique is simple (believe me, if it was complicated, I wouldn’t do it).  You place one hand on your chest and the other on your abdomen.  Take a slow, deep breath, taking in as much air as possible.  Your abdomen should press against your hand.  Hold that breath in for a few seconds, then slowly exhale.

VISUAL IMAGING. Basically this technique uses body awareness to do relaxation. Imagine being in a peaceful, restful place (your “happy place”). Now focus on different physical sensations, but not necessarily just painful areas. Everyone imagines differently, but I would not recommend an image of a banana split for someone who is trying to lose weight! Don’t sabotage your efforts like that.

PROGRESSIVE MUSCLE RELAXATION. This therapy is one of my favorites. It was just recently developed for people suffering with peripheral diabetic neuropathy. The idea is to flex the painful area then hold it briefly. Relax it, slowly easing the tension. I make this fun by drawing the alphabet with my foot. The movement seems to ease the pain a bit. By the time I get to the letter “Z”, I do usually feel better. I’ve actually been drawing the alphabet with my foot as I write this post. Can I multi-task, or WHAT???

CHRISTIAN POSITIVE AFFIRMATIONS.  There are many CD’s available to listen to on You Tube that provide positive thoughts for Christians.  These are Scripture-based and give us support as it seems the world has gotten more crazy.

Did you catch all of that?  Don’t worry – your subconscious did!

Pray for peace as we approach the last days.  Remember this is all God’s timing and we just need to hang on to Him.  🙂

TWILIGHT ZONE DAY

TL 5-11 TWILIGHT ZONE DAY

My friend Allyson shares her “Twilight Zone” experience with Type 1 Diabetes:

The “Twilight Zone” started here with Tayler’s dx with Type 1 Diabetes ~ Before Type 1, it seems that the difficult family/friends that exist in most people’s lives, would say something hurtful and I’d forget about it and move on. After Type 1 dx, when hurtful things weren’t only directed at me, but my child, there was no forgetting and moving on. Several family and so-called friends said some horrible things about my parenting, insinuating that I made her sick, etc. A few even attacked me right on my wall on Facebook. When I stood up for myself by explaining what Type 1 Diabetes is and that there was NO WAY to prevent it, they unfriended and blocked me and continued spouting off behind my back, calling me a bad mother, etc. Sadly, we have no family support, but I thank God Tayler has two parents here for her 24/7. Tayler has also made friends at Type 1 camp and a youth group who also have Type 1 Diabetes and that has been a tremendous help. Some family live out-of-state, and are busy with their own lives, so it’s kind of ‘out of sight, out of mind’, even with Facebook and all my posts. For others, it’s just easier to make-believe it doesn’t exist.

I have a “Twilight Zone” experience with chronic pain medication:

Since my accident several years ago, I have been diligently searching for effective pain management. My constant sciatic pain is absolutely unbearable. Funny thing about pain – once your friends find out you are in pain, they back away and leave. Some don’t back away as quickly as others, but eventually you find yourself alone looking in the mirror. You tell yourself that the pain is all you have left. Nothing helps – nothing. I tried physical therapy, chiropractic and every pain medication known to man including spinal blocks. I had a TENS unit for a while – then upgraded to something called Pain-free which is similar to a TENS unit. I’ve been told that surgery is not an option – they apparently cannot surgically un-rotate a rotated pelvis.

There’s a “Twilight Zone” episode called “The After Hours” where all the mannequins in a department store take turns coming to life. They are all given one month to go out and be human. They look and act just like people, but then are required to go back to the store and take their place as a mannequin once again so that the next one can have his or her turn. I feel as though I’m a mannequin on bad pain days or on days when my diabetes is not being kind. I am thankful for the “good” days when I feel more human!  This episode of “The Twilight Zone” (and many others) are on  You Tube to watch.  I won’t post it here due to possible copyright infringement.

Isn’t it sad when physical limitations cause barriers in relationships with people who supposedly love us? Why can’t we all just accept one another as we are – warts and all? Whether it’s Type 1 Diabetes or chronic pain, these conditions were certainly not “created” by anything in the surrounding environment! Tay’s Type 1 Diabetes was with her the day she was born. I had a stupid accident. No one sets out to be the underdog. Life happens and we need to stop the blame game. Allyson is not to blame for Tay’s Type 1 Diabetes. I am not to blame for having chronic pain. Somebody needs to be the bigger person, step up and apologize for misunderstanding the disease process. She feels bad enough – don’t make it worse.

Please read this commentary from John Manganiello:

People are often afraid of things they don’t understand. No one is responsible for causing diabetes. I know how important it is for us to have support in our battle with this every day. It’s not easy, especially for children and their Parents. Attending Camp and making other friends that share and understand, will help a lot in adjusting to living with it. When I was diagnosed at the age of 24, I knew no one who had it. My Family and friends helped, but didn’t understand and were afraid of it. We all need to continue to learn, support, and teach others about diabetes. There will always be those who just won’t try to understand. Staying focused and motivated is important.   🙂